Inherited Cardiomyopathy Clinic (ICC)

The Inherited Cardiomyopathy Clinic is a special heart clinic run together by heart doctors (cardiologists) and genetics specialists. It is for people who have, or may develop, an inherited (familial) heart muscle disease.​

Patients may be seen by a cardiologist, a genetic counsellor, or both, usually on the same day. The team reviews personal and family history to understand the pattern of heart disease in the family.​

Tests may include:

  • An echocardiogram (heart ultrasound) to look at heart size, shape, and how well it pumps.​
  • A cardiac MRI to get detailed pictures of the heart muscle and any scarring.​
  • Genetic testing to look for changes in genes that can cause inherited heart muscle problems and to help guide screening of family members.​

 

There is no long-term follow-up here; after the visit, test results and recommendations are sent back to your regular heart doctor or family doctor, who will provide your ongoing care.